To be diagnosed with an issue, and to not know where it came from can be very traumatizing. I was diagnosed with Epilepsy at age 19. For those of you who don’t know, it’s a neurological issue which sends the wrong messages to your brain and nerves causing lost thoughts, stares, shaking, and foaming at the mouth. For me, I was told that my heart and mind don’t connect. Unfortunately, I have all sorts of seizures, the Tonic, Clonic, and Grand Mal.
Having such with 27 seizures in one day, I was not supposed to make it or atleast do some of my everyday activities correctly. By the grace of God, I amble to live on my own, manage, and own my own business. As I have been connecting with and visiting other neurological patients, I came across the Angels Of Epilepsy Organization. This organization provides epileptic patients, and caregivers to connect, share experiences, discussions of auroras, medications, and how we deal with our Epilepsy and daily life. May I just say, absolutely amazing.
I was able to meet a lot of people with similar questions as I. Natalie, made me feel so welcomed in explaining my story. Do you know how many patients and caregivers are clueless to certain things, because we don’t have as many doctors who work on neurological issues, the first thing they are ready to say is “Surgery”. What’s even worse, let me inform you all of something and excuse the way I word it; we are all humans, neurological patients aren’t “Stupid,” I hate to see that word with a passion. This goes for doctors as well, we know when something is wrong with our bodies, we all know how to maintain to a certain extent. Some people are the most caring and some are the most inconsiderate.
If you have Epilepsy, or are an Epileptic caregiver, I strongly suggest joining the next zoom meeting, and even a chatroom is created so you can ask as many questions as you like, you can feel like someone understands you, mission accomplished.
Literaturebyjessc – Jessica Hunter
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